Happy New Year!
Posted by jenille610 on January 17, 2008
Happy 2008!
I realized I haven’t updated this blog since we came home and I apologize. It’s been a busy December filled with blood draws, appointments, hep locks, meds, etc. But, we did had a lovely, mellow Christmas at home.
Anyways, Christopher is doing GREAT!
He is back to his old self and then some! We were quite worried that he’d take some time to learn how to walk, talk, sit up again but those qualms went away the week after we came home. I’m pretty sure Christopher’s twin, Evan, was partly responsible for that. Now, Christopher is talking up a storm, singing, running, laughing, dancing like any other 19-month-year-old. I’ve dubbed him “Crazy Chris” because he’s just that – a crazy ball of energy and smiles. And when you put Chris with Evan, it’s nonstop mischief!
Christopher’s medicine schedule is pretty much the same from when we left the hospital and we slowly tapering his steroids schedule. He has the classic moon-face from the steroid use and I’ll be sad when those cheeks go away.
His lab work is beautiful with liver numbers being normal. Our only concern now is his up and down on the weight scale.
When we left the hospital, he was 21 pounds. And from his last appointment, he is down to 20.8 pounds. I’m trying very hard to make him eat but he’s being like any other picky toddler. I hope it doesn’t come to NG-tube feeding him again.
As for Jason and I, the stress melted away the moment we were on the road at discharge. We are anxious for Christopher to get a fever or for his liver numbers to jump up, but for now, it’s one day at a time.
2007 was a blessing in disguise and we only hope for more blessings this year.
Thank you for your continued support!
