After months of anticipation, Chris’ nurses finally gave us the go ahead to take Chris off of 3 of the 5 meds he was on! He would not longer need Cellcept (chemo), Prevacid (stomach liner) and Sceptra (antifungal)! He is now only down to 2 medications – Prograf (immunosuppressant), which he will take for the rest of his life, and baby Aspirin (somewhat blood thinner), which he will be on for about a year more.
We started tapering off the Cellcept about 5 months ago. We knew when Cellcept went away, the other two meds would follow simultaneously. However, this entailed blood draws every 2 weeks which Chris bravely endured. It was nothing new to him and every 2 weeks, he would hop on the seat and sit there quietly and patiently. Parents in the waiting room were amazed when they realized a toddler didn’t make a sound when getting blood drawn. And every visit, he would expect his graham cracker which he never ate. That cracked me up!
There were a couple of setbacks where we couldn’t taper the dosage for a week or two or when I got too busy with school to take him. We waited patiently not getting our hopes up and there he was everytime being the good patient that he is. My brave boy!
Wow! Just a year ago, I was juggling about 15 medications daily which required a spreadsheet and pill box. It seems like another lifetime ago.
Thank you for following Chris’ progress. Hopefully, it’ll be great news from here on out.
