Christopher's 2nd Chance

Our fundraising journey and the story of a brave boy

Archive for the ‘Mom's Brag Book Blog’ Category

To Have Faith

Posted by jenille610 on July 1, 2007

Last night my mom “forced” me to take Christopher to a healing prayer. I say “force” because yes, I did NOT want to go. It was just going to be a bunch of fanatics and their deep faith that God would make it better. Why hope for the better when, in reality, this was Christopher’s fate?

Honestly, I felt that God had betrayed me and praying was the last thing I was going to do. People always told me to pray especially during these trying times but there was something deeper that prevented me from praying. I was hurt, angry, dejected – prayer was the last thing on my mind and the last thing I was going to do. I was angry with myself for being angry at God. Yet, I felt compelled to go because what did I have to lose? All that would happen would be that God would continue to ignore my pleas of desperation.

We got there in time for the Exposition of the Sacraments. That is when the Body of Christ in the form of the host that you take at Holy Communion is put into a beautiful holder and is presented to the people. As the priest walked down each aisle, he would say that a particular person’s illness was being healed. Could it really be possible?

Me being a stubborn jack-Catholic, I rolled my eyes thinking, “There’s no way in h*ll that God could just heal a person then and there.” Or could He? Had I turned into the doubting Thomas? That is when the tears started rolling. I had become a bad person; I had succumbed to the glass half-empty. I really didn’t wanna be mad at God and as much as I didn’t want to be there, being at that healing prayer was my solace. I squeezed into Christopher as he snuggled into me and I spoke with God for the first time in a long time.

“Why me, God?”

“Why MY Christopher?”

“You’ve always been there for me when I needed you but why forsake me NOW?”

And finally, “God, I’m sorry. I trust you and leave our fate in your hands.”

I desperately sought answers to my questions and for the priest to speak of a particular child’s liver illness being healed that very second but that did not come. Instead, the “sick” approached the front row in which the priest prayed over them. It was our turn. The priest placed his hand on Chris, touched his cheeks with anointed oil and prayed. God hadn’t healed Christopher physically but He graced me with Faith that night.

After the healing prayer, the priest spoke about God’s great healing power. He spoke of the crosses people carry in their lives and how those crosses get heavier. After all, “Christopher” means to bear, to carry. But then, God wouldn’t give people those crosses without strengthening their backs. Sometimes He’ll will for a person to get better. Sometimes He won’t because maybe through a person’s sufferings, it atones for someone else’s sins. Who knows?

I’m not a die-hard Catholic, but having faith that God will see me through it is all that I can hope for. I’m not angry with God anymore and I know that He has a plan for my Chris-Chris and us. I just have to have faith that we’ll make it through with God’s help.

NOTE: I don’t mean to upset anyone by my words on religion. I’m just pointing out my return from darkness. A lot of my family are those “fanatics” and I love them and respect them and their relationship with God. Sorry if I have offended anyone. God bless!

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Sugar runs thru the veins…

Posted by jenille610 on June 26, 2007

ChrisCake

…just like my Mom!  “Whatcha got there, Mom?”

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It MUST be a twin thing…

Posted by jenille610 on June 26, 2007

TwinsSleep

This is how they fell asleep.

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Happy 1st Birthday, Chris and Evan!

Posted by jenille610 on June 1, 2007

It’s been a whirlwind year, boys! But, Mom and Dad (with gracious help) have survived.

It’s been quite unusual raising you boys – quite different than the first time around. For a moment, we thought there was a problem when your first week of life was in the Pediatric Intensive Care Unit. Chris being the precocious, demanding lil’ one and Evan being the mellow, stoic one; you guys triumphed and got stronger each day. You must have known how bad Mommy wanted to cuddle you both! I’m truly grateful we got to bring you home because, as you know, some of your neighbors weren’t so fortunate to go home even until this day.

Even with Chris’ sickness, you both try to live normal lives: hitting your milestones, fighting with each other for the same toy, and squabbling over who’s going to get picked up first…I enjoy every moment of it! I particularly enjoy how lovingly and patiently your Kuya Nate plays and takes care of you two. You’re lucky he’s your big brother!

I never imagined God would bless me with TWO babies at once…And there are not enough words out there to show how much we truly appreciate everyone helping us with you two particularly Auntie Wilda and your grandparents.

We are happy, boys, to celebrate your first year of life and we are excited to see what the future holds…

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Keep smiling, Boo-Boo!

Posted by jenille610 on May 30, 2007


Keep smiling, Boo-Boo!

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What I do when I come home – snuggle with my babe…

Posted by jenille610 on May 30, 2007


What I do when I come home – snuggle with my babes!

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Thank you for all your kind thoughts and prayers …

Posted by jenille610 on May 25, 2007


Thank you for all your kind thoughts and prayers for Christopher.

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Update on Christopher…

Posted by jenille610 on May 18, 2007

After months of uncertainty, the inevitable must happen – Chris will be transplanted. I didn’t want this blog to be so serious and ridden with sad news but it is in this moment that defines me and what we’re going through.

At his last doctor visit, they told us a timeline as quickly as the end of summer. I was taken aback by the reality that it was going to happen so quickly but I guess the sooner the better, right? Do it while he still can’t remember…or will he remember?

It’s been a couple of weeks since the news and every day is a challenge not to cry. Feelings of sadness, anger, desperation, etc. stir quietly in my head. I try to block it out with work, work, work or a good run on the treadmill or in the moments playing with the boys but I know the inevitable must happen. It scares me beyond belief. Don’t even ask how Jason is feeling.

I tell myself to be strong for my kids but even Goliath was knocked down. It’s very, very difficult to see the glass half-full anymore and at times I’m angry and need to blame someone. At the same time, I know that this is Chris’ second chance at life – a blessing in disguise because without the surgery, it’d be worse.

The true, bittersweet icing on the cake is that a living donor would probably be needed. That means Jason or I would go under donating a piece of our own liver (it regenerates).

Last night, I foresaw how our lives would change overnight: me at the hospital (like all those other times) juggling between taking care of my husband or child (they’d be on separate floors so you do the math) with Nate and Evan at home with my family wondering when Mom, Dad, and Chris would be back. It’s quite exhausting day in and day out but I guess this would be the big test, right? How resilent am I really?

I don’t know where I’ll get the strength once the time comes but I know this will be the biggest challenge I’d ever have to face. To risk losing my child, my husband, or both would be devastating. But to not try to save Chris’ life would be irresponsible.

I gotta do what I got to do.

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How difficult it was to take a pic of the boys to…

Posted by jenille610 on May 12, 2007


How difficult it was to take a pic of the boys together! Thank goodness for Picasa collage! I took a separate pic of each of them and ta-da! Perfect!

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Beat goes on.

Posted by jenille610 on March 21, 2007

We returned from Chris’ Evaluation with the Liver Transplant Team at UCSF. What a day! It entailed Chris giving 8 vials of blood for lab work, a meeting with the surgeons, an ultrasound, an x-ray, meeting with the social worker, then the nutritionist, anesthesiologist, and the icing was the echocardiogram. My poor Chris-Chris!

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Priceless…

Posted by jenille610 on March 17, 2007

As always, Chris-Chris never wants to sleep. He’ll fight the tired feeling leaving him cranky and upset. That’s why he’s my sleeping buddy and Evan is Jason’s sleeping buddy…Jason has it slightly easier.

Anyways, this one night, I could not put Chris-Chris to sleep. He was pissed and sleepy and crying. I was pissed and sleepy and almost crying. I needed space away from him so I left him on the bed where Evan’s was sleeping. Next thing you know, I come back to this Kodak moment.

Twins will drive you nuts but every so often, its worth being so nutty.

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Day by day…

Posted by jenille610 on January 21, 2007

Just when we think Christopher has a fighting chance (his color is good, labs are good, tummy not distended, etc), we were admitted to UCSF on Monday to have an NG tube placed in Chris’ nose. Even though Chris eats more than Evan, apparently, he hasn’t gained weight in a month and his doctors are concerned this puts him at a developmental disadvantage as well as an almost last-ditch effort before the transplant talk. Their solution: to night feed him and see what his liver does with all that volume.

The worse part of it all is that when Chris pulls his tube out of his nose, I have to put it back. What a horrible task to but it must be done with the utmost love. He pulled it twice already and I can say, he puts up a really good fight!

As of last Thurs., Chris has gained 4oz. in a week so it looks promising. But, as his nurse said, “It’s a marathon, not a sprint”. Chris-Chris is keeping everyone on their toes! I’m trying to look at the glass half-full but that glass is looking slightly less full. Day by day…

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